The Sense ficció from Tuesday collected the harrowing testimony of families with children with rare diseases. So rare that, instead of having a name, they have a code of numbers and letters that makes them even more unusual and unknown. Moure muntanyes shows the titanic and exhausting struggle of parents to get treatment for their children that improves their living conditions. It is a documentary where we see their day-to-day life, which is not easy and very expensive, to meet the needs of these beloved children who are so well cared for at home, but so abandoned by institutions and science. It was inevitable to think if the Minister of Health, Olga Pané, or the president Salvador Illa, who was Minister of Health, would be watching the Sense ficció. Moure muntanyes delves into the daily lives of families with great sensitivity and prudence, but its observation is not neutral. Scenes are selected that show the emotional and physical exhaustion, the family consequences, the lack of rest, the perseverance, and the economic implications. The camera maintains the right distance from the minors. The incorporation of family mobile phone recordings over the years gives the perspective of the passage of time, of commitment, and of unconditional love for their children. But also how their lives have been transformed. It was inevitable, in the odyssey of these families, to read it with a gender perspective.The protagonists of the documentary, the mothers and fathers, explain themselves with a clarity and honesty that is deeply moving. The documentary manages to weave bonds of trust, and it is noticeable that the witnesses also see the production as an almost cathartic opportunity for personal, medical, and social denunciation. They utter devastating phrases and poignant conclusions before the camera: “At the most vulnerable moment, you have to be as lucid as possible”. “If you don't have a diagnosis, you don't have a prognosis”. “Despite everything, my daughter is happy. I am not. But she is”. “Not enough research is done because it is not profitable”. “When you have a diagnosis, it's very hard. But when you don't, it's very hard”. “We, before the diagnosis, already realized that Martí would not be the child we expected”. “Every new stage brings me new grief. And grief has no expiration date”. “A diagnosis is a sentence, because it takes away your hope”. “There is nothing worse than seeing what your child needs and not being able to give it to them because you don't have money”. “We become caregivers and lose the perspective that we are parents”. “I understood why hospitals have closed windows. Because when they gave us the diagnosis in that room, I looked at all the windows. I would have jumped out the window with my daughter”. “Eva is Eva. Sometimes her circumstances are shit, but she is not. She is perfect”. All these phrases linger within you for days after watching the documentary.
