The trip three years ago to Mexico was supposed to be about getting to know another way of understanding death, but it didn't turn out as Nina Roma expected. While mother and daughter happily strolled among the graves, the father and brother wanted to leave because they were not prepared to think about death. "I can't force anyone to think about death, let alone mine." This is how blunt the poet and lecturer Nina Roma (Sant Cugat del Vallès, 1991) is, who was born with epidermolysis bullosa, a genetic disease popularly known as butterfly skin, which causes extreme skin fragility, and a simple bump or friction can cause wounds or blisters. It is a rare and incurable minority disease that affects about sixty people in Catalonia and just over 500 in Spain.