The trip three years ago to Mexico was supposed to be about getting to know another way of understanding death, but it didn't end up going as Nina Roma expected. While mother and daughter happily strolled among the graves, the father and brother wanted to leave because they weren't prepared to think about death. "I can't force anyone to think about death, let alone mine." Such is the forceful statement of poet and speaker Nina Roma (Sant Cugat del Vallès, 1991), who was born with epidermolysis bullosa, a genetic disease popularly known as butterfly skin that causes extreme skin fragility, and a simple bump or friction can cause wounds or blisters. It is a rare and incurable minority disease that affects about sixty people in Catalonia and just over 500 in Spain.