It's been more than two years since Rosa Alarcón He had to resign from his job as a councilor for the Barcelona City Council For health reasons. She explained that she suffers from Meige syndrome, which causes spasms that make her mouth move involuntarily and close her eyes, momentarily losing her vision. She cannot read or drive, and has sometimes fallen in the street due to this muscular dystonia, a type of neurological disease like Parkinson's or essential tremor. Alarcón explains that, although the disease is chronic and limits the daily lives of those who suffer from it, it is largely invisible and "does not receive an adequate healthcare response." For this reason, she has spearheaded the creation of the Dystonia Catalunya Association, which seeks to improve the quality of life of those affected, and this Thursday she presented some of its demands before the Health Committee of the Parliament of Catalonia. "We are not asking for privileges. We are asking for dignity, equity, and quality of life," the association's president emphasized to the parliamentary groups. Specifically, she emphasized that they need individualized attention, appropriate rehabilitation, and access to centers best suited to their needs, since "every dystonia is different." According to the association's figures, it affects approximately 30 to 50 out of every 100,000 people worldwide, although there is "underdiagnosis," and often it is either not detected or detected late, Alarcón said. For all these reasons, she has requested specialized units for neurological disorders like hers throughout the Catalan hospital network. To illustrate the invisibility suffered by people with dystonia, Alarcón recounted an anecdote from when they were trying to register the association. They had practically received approval, but were asked for one last document specifying whether "dystonia" was a made-up word, an acronym that needed to be explained, or if it had a specific meaning that needed to be explained. "It's an example of the lack of awareness that still exists," said the president of the organization.