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    <title><![CDATA[Ara in English - children's palliative care]]></title>
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    <description><![CDATA[Ara in English - children's palliative care]]></description>
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      <title><![CDATA["I would like to spend more time with you, but I need to rest."]]></title>
      <link><![CDATA[https://en.ara.cat/kids/would-like-to-spend-more-time-with-you-but-need-to-rest_1_5525132.html]]></link>
      <description><![CDATA[<p><img src="https://static1.ara.cat/clip/6b2963e4-6186-49c0-bb11-e1e2735885e9_16-9-aspect-ratio_default_0_x905y1017.jpg" /></p><p>"I would like to spend more time with you, but I need to rest." These were the last words Pau Verdaguer spoke just hours before his death on September 17, 2024, at the age of 20. The young man suffered from an autoimmune disease since birth, congenital erythroblastopenia or Blackfan-Diamond disease, which prevented him from producing red blood cells. He was diagnosed at birth, on January 5. Pau arrived like a true Three Kings' Day gift. The icing on the cake of a close-knit family made up of his parents, Cristina and Sergi, and his siblings, Adriana, Miquel, and Albert, who at the time were 10, 11, and 14 years old, respectively.</p>]]></description>
      <dc:creator><![CDATA[Esther Escolán]]></dc:creator>
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      <pubDate><![CDATA[Sat, 11 Oct 2025 06:02:12 +0000]]></pubDate>
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      <media:title><![CDATA[Pau Verdaguer spent the last six years of his life in the care of the palliative care team.]]></media:title>
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      <subtitle><![CDATA[The pediatric palliative care unit at Sant Pau Hospital provides care to children with very serious illnesses in their final months of life.]]></subtitle>
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