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    <title><![CDATA[Ara in English - neurodegenerative diseases]]></title>
    <link><![CDATA[https://en.ara.cat/etiquetes/neurodegenerative-diseases/]]></link>
    <description><![CDATA[Ara in English - neurodegenerative diseases]]></description>
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      <title><![CDATA[Living with uncertainty: Lia has been waiting for a diagnosis since birth.]]></title>
      <link><![CDATA[https://en.ara.cat/kids/lia-and-eleven-other-children-await-diagnosis_130_5522808.html]]></link>
      <description><![CDATA[<p><img src="https://static1.ara.cat/clip/1646c850-9018-4aca-b2be-3d7604bc658c_16-9-aspect-ratio_default_0.jpg" /></p><p>Lia will turn three on December 28th. She doesn't walk independently – she crawls a lot, of course – but she's close to it, and although she communicates in her own way – she points and makes herself understood – she still doesn't speak beyond a few words. She's had multiple tests, and she's being monitored by specialists of all kinds, but they still haven't found the disease that explains the causes of this global developmental delay, although they suspect it could be a rare disease of genetic origin, explains her mother, Laura López Crespo, 39.</p>]]></description>
      <dc:creator><![CDATA[Lara Bonilla]]></dc:creator>
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      <pubDate><![CDATA[Thu, 09 Oct 2025 05:01:22 +0000]]></pubDate>
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      <media:title><![CDATA[Lia with her mother, Laura]]></media:title>
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      <subtitle><![CDATA[More than one hundred experts from Europe and Latin America are gathering for a pioneering hackathon to try to uncover the rare disease affecting 12 children.]]></subtitle>
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