A research team from the Bellvitge Biomedical Research Institute (Idibell), with participation from Bellvitge Hospital, has identified a new rare disease previously unknown worldwide. The condition has so far been confirmed in only 13 people from eight unrelated families, one of whom is a patient at Bellvitge Hospital.

While we sleep, the body recovers from the day's experiences. Restful sleep is therefore essential for physical and mental preparation to face the new day. However, the reality is that one in three children and adolescents do not get the necessary sleep, which impacts their physical, mental, and emotional health. According to the latest FAROS report from the School of Health at the San Juan de Dios Hospital in Barcelona, ​​17% of children go to school sleepy and 4% fall asleep in class. For adolescents, the figures are even more alarming, as 52% admit to going to school having slept less than 8 hours, and 84% have difficulty waking up.