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    <title><![CDATA[Ara in English - bioethics]]></title>
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    <description><![CDATA[Ara in English - bioethics]]></description>
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    <ttl>10</ttl>
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      <title><![CDATA[Chinese researchers hid the death of a girl after experimental gene therapy]]></title>
      <link><![CDATA[https://en.ara.cat/society/chinese-researchers-concealed-the-death-of-girl-after-experimental-gene-therapy_1_5807952.html]]></link>
      <description><![CDATA[<p><img src="https://static1.ara.cat/clip/f9e4083c-2da3-4a46-a504-188dafe33b1e_16-9-aspect-ratio_default_0.jpg" /></p><p>The race for gene therapy and the desperation of some parents have ended up costing the life of a six-year-old girl in China. The minor, named Mei – a pseudonym to protect the family's privacy – died at Xinhua Hospital in Shanghai in March 2025 due to thrombotic microangiopathy – that is, the formation of deadly microscopic clots – seven days after receiving an injection of a virus at the base of her spine. The parents had opted for this therapy after learning that their daughter had an alteration in the CHD3 gene, which caused her a syndrome compatible with autism and a consequent delay in physical and cognitive development.</p>]]></description>
      <dc:creator><![CDATA[Sebastián Marín]]></dc:creator>
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      <pubDate><![CDATA[Fri, 24 Jul 2026 15:16:02 +0000]]></pubDate>
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      <media:title><![CDATA[The Xinhua Hospital, affiliated with the School of Medicine of Shanghai Jiao Tong University]]></media:title>
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      <subtitle><![CDATA[The parents of the minor, who had financed all the research that culminated in the fatal injection of a virus, denounce malpractice]]></subtitle>
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      <title><![CDATA[Face transplant: identity and anonymity]]></title>
      <link><![CDATA[https://en.ara.cat/opinion/face-transplant-identity-and-anonymity_129_5640655.html]]></link>
      <description><![CDATA[<p><img src="https://static1.ara.cat/clip/a03056c5-cbca-4c11-9d02-32616beaf6e0_16-9-aspect-ratio_default_0.jpg" /></p><p>In 1998, Clint Hallam, a New Zealander who had amputated his own hand with a chainsaw, became the first man in the world to receive a hand transplant, at a hospital in Lyon, France. The limb belonged to a young motorcyclist who had died in a traffic accident. The operation was an unprecedented medical success, but a tragic human failure. Three years later, after repeated requests, his transplanted hand was removed at a clinic in London. It bothered him; he felt mentally disconnected from it.</p>]]></description>
      <dc:creator><![CDATA[Ester Busquets Alibés]]></dc:creator>
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      <pubDate><![CDATA[Fri, 06 Feb 2026 16:55:51 +0000]]></pubDate>
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      <media:title><![CDATA[Images of the transplant facing Vall d'Hebron.]]></media:title>
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      <title><![CDATA[Desire medicine for human incubators]]></title>
      <link><![CDATA[https://en.ara.cat/opinion/desire-medicine-for-human-incubators_129_5408602.html]]></link>
      <description><![CDATA[<p><img src="https://static1.ara.cat/clip/f18554f8-7320-4c1c-8208-4c27fb128b7e_16-9-aspect-ratio_default_0.jpg" /></p><p>One of the images of the pandemic that will remain etched in my memory forever was that of a hotel room in Kiev with dozens of babies lined up like products in a supermarket. It was a veritable stockpile of babies that couldn't be delivered due to the lockdown resulting from the so-called "unintelligible" situation. <em>surrogacy</em>, a euphemism so aseptic, so technical, that it doesn't trouble our consciences. Spanish law prohibits this practice because it is ethically contrary to human dignity, due to the commodification of life and the instrumentalization of women, almost always poor, to satisfy the desires of rich men and women.</p>]]></description>
      <dc:creator><![CDATA[Najat El Hachmi]]></dc:creator>
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      <pubDate><![CDATA[Wed, 11 Jun 2025 15:18:30 +0000]]></pubDate>
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      <media:title><![CDATA[Babies at the Venice Hotel, owned by the BioTexCom clinic in Kyiv, Ukraine]]></media:title>
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