Patients with amyotrophic lateral sclerosis (ALS) in Catalonia will be able to apply for the benefit of the long-awaited ELA law Starting next week, a year and a half after its approval in the Congress of Deputies, the Catalan government will give the green light to its implementation at its weekly meeting on Tuesday, March 17th, and patients will be able to apply that same week. Once it receives an application, the Catalan executive will have a maximum of three months to respond, recognize the degree of disability, and provide the assistance. The Department of Social Rights estimates that there are around 200 people who can apply for Level III+ of extreme dependency—created specifically for this condition—which is intended to guarantee the rights of those suffering from it. incurable neurodegenerative disease to receive specialized service up to 24 hours a day if needed.

American actor Eric Dane, known for his role as the charismatic Dr. Mark Sloan in the series Grey's Anatomy, She died this Thursday at the age of 53, less than a year after announcing that she was suffering from amyotrophic lateral sclerosis, ALS.

It was impossible for Juan Carlos Unzué to attend the ARA celebration where he was symbolically presented with the sixth Carles Capdevila award for his work in raising awareness of amyotrophic lateral sclerosis, the dreaded ALS, a disease that the former player has suffered from for over five years. Although he sent an emotional and assertive message of gratitude, We were finally able to present him with the award in person during an interview in which he reflects on his fight to improve care for people with illnesses like his, as well as his sporting life and, above all, his perspective on life and the values he uses to cope. Unzué, whose illness has already forced him to give up his work as a sports commentator, has used his fame to help bring the issue of care and the enormous cost of this debilitating illness to the forefront of the political agenda, which has contributed to the approval of [the relevant legislation]. a law that specifically guarantees financial support for the most serious cases, It streamlines procedures and ensures better training for healthcare personnel. He welcomed us a few days before Christmas to his apartment on the outskirts of Barcelona. He was accompanied at all times by his wife, with whom he has shared his life since they were very young, and by a family that is about to grow with a grandchild. In Unzué's home there are many difficulties, but also great humor and a lot of generosity. The former goalkeeper excitedly described the car trip to Pamplona to spend the Christmas holidays with his large family, headed by his mother, Camino. Unzué made it very easy for us: he is exactly as he was. Precise, generous, a fighter. And he has a common sense that leaves you speechless with useless words.

It's hard to find warmer people than Juan Carlos Unzué. Listening to him is a joy. His gaze and voice embrace everyone he meets, even through a small screen. With this spirit, the former goalkeeper and coach dedicates a message of gratitude on the occasion of receiving the sixth Carles Capdevila Award, a prize he is receiving this year for his extraordinary work raising awareness of amyotrophic lateral sclerosis, the dreaded and cursed ALS, a disease he has suffered from for more than five years. He is now 58.

One year after theapproval of the ELA law, the Spanish government creates the III+ degree of extreme dependency that must guarantee the rights of those suffering from this incurable neurodegenerative disease to receive specialized services 24 hours a day. The Minister of Social Rights, Pablo Bustinduy, announced this Tuesday that patients in a more advanced stage of the disease will receive a benefit "of up to 10,000 euros per month" to cover the costs of the professional caregivers they need to survive.

A team of scientists has managed to decipher the brain activity that occurs during internal speech—the monologue that takes place in people's minds when they think about speaking—and has translated it into words with an accuracy of up to 74%. The research, led by Stanford University in the United States, was published this Thursday in the journalCell and could help people who cannot speak communicate more easily using brain-computer interface (BCI) technologies.

"The tsunami of seniors is already here," warn sources from the Department of Health. Therefore, the authorities face a major challenge: adapting the healthcare system to the new social reality of an increasingly aging and fragile population. In fact, one in five Catalans over the age of 65 is not in good health and requires more intensive healthcare and social care than the rest. Currently, practically half of the regional budget—approximately €12 billion—is allocated to the care and treatment of these individuals, but the Department of Health admits that almost a third of these resources provide no benefit to patients. For example, duplications and contraindications arise between the different healthcare centers and specialists who treat them.

It has been three decades since a new therapy was approved for amyotrophic lateral sclerosis (ALS), a disease that currently offers no treatment and affects approximately 4,500 people across Spain. On Thursday, the Ministry of Health approved funding for Tofersén, an innovative treatment that helps preserve neuronal function and slow the progression of the disease in patients with a genetic cause. The mutation is present in a small percentage of diagnoses: one in ten patients has some alteration that experts believe could be used as a therapeutic target in the future. Currently, several clinical trials are underway studying other mutations to provide more therapies to modify the course of the disease and improve the quality of life of those affected.

It's been almost six years since Juan Carlos Unzué (58, Navarra) received life-changing news: he was diagnosed with amyotrophic lateral sclerosis (ALS). Since then, the former football coach has managed to bring new meaning to his daily life and turned misfortune into a reason to fight. He left the First Division coaching benches to lead the movement for the dignity of ALS sufferers and has reaped rewards: after repeated attempts, Congress approved the long-awaited ALS law a few months ago. Now, after years on the front lines, he has decided to step back and announced that he will stop broadcasting on DAZN. He also explained that, in the end, he will not perform a tracheotomy, the surgical procedure that allows ALS sufferers to continue breathing. He is responding to ARA in writing.